Kambell's Big Scare!!!

I decided to put the whole story on our blog so that everyone could get the details all at once.
Kambell had what we are now calling a "near seizure" on Tuesday at 3:00. He was with Ms. Amy, our in-home childcare provider. He was crawling and whining to be picked up and basically he started swaying and looking as if he were about to pass out. By the time Amy picked him up, his eyes were rolled back and he was unconscious. It took him some time to get back to normal, but eventually he did come around. I arrived about 20 minutes after it happened and we called our Pediatrician immediately. He advised us to go to Cooks ER and that is where we spent the rest of that night. The first night in Cooks, Kambell got an EKG and a chest X-ray. He had recently had the Croup and was still pretty wheezy from that. The test results looked great and we were happy to be declared healthy and discharged.
The following morning, I took Kambell to our Pediatrician just to have someone check him out once more. He and I talked about what to look for, before and after a seizure, just in case. He was convinced that it was nothing more than low blood sugar and that all was well. (Kam was on steroids for the Croup and was having NO appetite at the time.)
At 5:00 Wednesday evening, Kambell had his first full-on seizure. Let me tell you, it was by far the scariest thing I have ever witnessed in my life! He was crying extremely hard, and I walked away for just a second. Suddenly he wasn't crying any longer so I rushed back and sure enough he was rolling onto his back and his eyes were rolled back. He became very stiff and his arms and legs stood straight in the air. I instinctively scooped him up to hold him and that is when the jerking began. This all seemed to be lasting a lifetime, but only took about 30 seconds. Kambell finally became conscious and awake but was completely non-responsive for nearly 5 minutes.
Believe it or not, Shelley walked through my front door about 2 minutes after this happened! She called our Pediatrician AT HOME, and he was great! He called the ER ahead and made special requests for us and even gave us permission to call throughout the night if they were not making us feel comfortable or well taken care of. On Wednesday, they took us much more seriously and after some blood work and a CT scan we were checked in.
The rest is a big blur, due to sleeplessness and stress... Kambell was assigned to a great Neurologist right away and he was given blood and urine tests, MRI, and 2 EEG assessments.
All tests were coming back with positive results until we got to the MRI. The Neurologist took on a whole new tone with us and became very serious as he explained that he found an alarming spot on Kam's brain. It is located on the right, back side and is pretty big. We were packed up and ready to leave, and he changed his mind after reviewing the screens. Kam was ordered to go through the 24 hour EEG test AGAIN!!! Thursday night was extremely stressful, after learning that your child has something unknown going on in their brain. On Friday, our Neurologist came in to review the EEG screen live and said that again, there were no signs of seizure activity, especially in the part of the brain where the spot was located! YAY! Great news. The only downfall is that the spot that was found in his brain is a big question mark. Dr. Acosta reassured us that it is not in fact a mass or a tumor. It could be any number of things, but right now I am greatful for what it is NOT!
The Dr. also seems to think that he may have a "breath holding" problem. Anyone who knows my Kambell personally could tell you that this is highly possible. He is quite the fiesty baby!!! :) Basically, he gets himself so upset and loses oxygen to the extent that he passes out. Then his immature nervous system reacts by having a seizure. Only time will tell on this one...
From this point on, we have follow-up appointments with the Neurologist in 2 weeks, and then a re-do on the MRI in about 3 months. The second MRI will give them a comparison on the trouble spot to see if it grows, changes, etc...
Right now, we are educating ourselves on seizures and hoping and praying that this particular symptom simply goes away. We are so incredibly blessed to have received the numerous prayers and good wishes from both friends and strangers.
I simply could not have gotten through this without the encouraging thoughts, words, texts from everyone! Keith and I are both very touched!
Please continue to pray for Kam, that he can continue to remain healthy. We are thinking positive thoughts at this point and anticipate no further complications.