Kambell update!

Our New Normal: Kambell has been doing really well since his hospital stay. He has only had a few set backs. One of the health concerns was that he was slightly developmentally delayed. This combined with the MRI results and the seizures was just something to keep an eye on. Fortunately, Kam has mastered walking and is verbalizing a BUNCH! He seems right on target suddenly, which is fantastic!!! He has had 2 additional seizures since being in the hospital. One could have been a Breath Holding seizure, but the other one was not, due to him not crying at all prior to the seizure. The Neurologist has him on Seizure meds only when he is running a fever or has a confirmed viral infection. Seizures are more frequent during these times. Kambell seems to be getting clogged eye ducts again. His eyes have been disgusting for the past 2 weeks, and hopefully we'll get him into our Pediatrician tomorrow to check it out. Even antibiotic drops are not helping. Kambell also seems to have one droopy and swelled eye. B/c of the "gunk" it is hard to judge if we should be alarmed b/c of his brain, or if it related to the "gunk"... Hopefully the Dr. will ease our minds about this tomorrow.

Test results: Both EEG's came back okay, now we are waiting for the Metabolic, blood, and urine testing... And again in September, he will have the follow-up MRI to track the suspicious spot on his brain.

Behavior: Kambell is still very aggressive and his self injury behavior has escalated, but it does seem to come and go. It is very difficult to provide consistent consequences for him but we are still on Baby Boot Camp mode. He is having a terrible time going to the childcare at church every evening. He cries for the entire time that we are in "big church." Poor baby. I'm hoping he'll get a little better each week. We skipped church this weekend due to his eyes being so bad.

Kam's Future: Please continue to pray for our little guy as we try to figure out what is going on with his little brain and that he continues to grow and develop and can find happiness and joy increasingly. Again, thank you to everyone for your thoughtfulness and prayers thus far!