ECI Update!

Kambell and his newest "coping" skills! He searches out tags to rub when he is upset now and has recently discovered a tag under the cushion of our rocking chair. So here he is soothing himself. Cute and funny!

ECI came today and I am happy to report.... Drumroll please.... ALL GOOD NEWS!!! :)

Yes, I said it, good news about Kambell Allen!

Developmentally, Kambell is on, or above, age level in all areas! This is huge, b/c the Neurologists said this would be the number 1 sign that things are not okay if he shows gaps developmentally. So, since his seizure journey began, he has gone from mildly delayed to above average! Mr. Smarty Pants!!

The only part of the assessment that he 'failed' was Vision and Nutrition. The vision portion is not accurate and we just need to follow-up with the Eye Doctor at Cooks to eliminate any problems. The nurse said that it is common for children with seizure disorders to have vision problems.

Failing Nutrition was no surprise to me. Due to Kambell's sensory issues, he is eating less and less frequently lately. In the last two weeks, he has lost 2 pounds and is now in the 3rd percentile :( He is officially labeled with "failure to thrive" but the Nutritionist will start on Monday and I'm hoping we can get some great ideas from her. ECI is currently without an Occupational Therapist, but they decided to put a contract out for one to get Kambell some services ASAP due to his sensory issues.

And, we already will begin to receive Behavior Therapy, twice monthly, to deal with his self-injury behavior; as well as the nurse visiting once per month to discuss seizure disorders and answer questions we may have.

I am very pleased with ECI and feel hopeful that we will all become better adjusted to our new normal with the help of these kind and generous people. It will not be easy having therapists in and out of our home so frequently (up to 4 times per week) but it will be worth it!

I am sooooooo proud of him! He is doing so much better lately and is slowly but surely maturing and coping better. The seizures have continued, but his behavior is slightly, but noticably better! YAY for Kambell and YAY for good news!