Today was Kambell's big day! His final OT assessment and first behavior therapy were today. Fortunately, Kambell was in full form for them and had many melt downs, and demonstrated nearly every symptom I have ever verbalized to them, right in front of everyone. Normally this is an embarassing moment, but it was great for the professionals to see him at his worst. I learned SOOOOO much and got some much needed advice and feedback from everyone. Hopefully, we will see big improvements in the near future.
He has been diagnosed with Sensory Processing Disorder (aka Sensory Integration Disorder) with a slight Auditory Processing Disorder. I am not too familiar with the Auditory part, but I have dealt with Sensory kiddos before as a PPCD teacher.
The biggest agreement among everyone involved, is that Kambell does not seem to be Autistic. They explained to me that SPD is a symptom of AU, and is seperate from AU. It is common for children to have SPD w/o being AU. This is such a relief to me. Most likely, this happened b/c of the seizures and his under-developed nervous system, according to the OT. This is something that Kam will always struggle with, but he will be able to be a functional adult... just a little quirky. I can live with quirky :)
There is lots of great information at...
http://www.brighttots.com/sensory_integration
We will continue getting therapy through ECI, and follow up with our Neuro in Sept. We also have a new Neuro to visit in Sept for a 2nd opinion!
$80.85 HEB Grocery Haul
1 week ago
2 comments:
I am amazaed at your strength. Your sons are so lucky to have you as their mother.
I'm happy you are happy with the result of the assessments! Quirky is how I always describe my Owen. Quirky is different, quirky can be hard, but quirky is a whole lot of fun sometimes, too. :)
(((hugs))) to you! I know how hard it is to walk down that path of having a child be diagnosed and being so worried of the Unknown.
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