Kambell and ECI

I have to admit it, I have been waaaayyyy stressed out lately about my poor little Kambell! He is doing well since finishing up his first Anti-seizure medication. He has had only one seizure and it was the longest one yet, lasting 4 minutes long. This time, however the seizure was a gran mal seizure, where he was spaced out and not jerking. Haven't talked to the Neuro about this just yet, but curious to see exactly what the change is...

Anyways... back to ECI...

ECI came for the Parent Survey last week and I felt so much better after meeting with the Service Coordinator. Kambell automatically qualifies for services based on his seizure disorder. Next week, a Nurse, Child Psychologist, Nutritionist, and Occupational Therapist will be coming out to do formal testing with Kam. The Child Psych and OT will address his sensory issues and self injury behavior. He automatically qualifies for the Counseling services to deal with the agression and self-injury behavior due to it being a common symptom of seizure disorders. The assessment will determine the amt. of interventions needed. The Nurse will perform an AU assessment and also determine if there is a Sensory Processing Disorder. The Nutritionist will help us learn how to get him to eat better. He tends to chew and spit food, or hoard it in his mouth for hours sometimes (again, sensory). He is under the 10th percentile in weight and this automatically qualifies him for services from them. The OT will assess his sensory issues and clumsiness to determine if Kam needs interventions there as well.

The unbelievable part about this is that we pay $50 per month for ECI, regardless of the amt. of services he qualifies for! This is great! We are guaranteed these services for 6 months at a time. I am so releived to have help coming and to have the summer off to structure his little life and plan for a happy and healthy future for him. Another great thing about ECI is that when I do go back to work, they will go to his daycare to provide services there as well. This will help especially if he qualifies for "play therapy" so that they can integrate other kiddos as well and work on some of his social skills.

It feels great to be hopeful and to see the recent smiles on my babies face :)

Thanks again to EVERYONE who has been praying and thinking about our family during this trying time in our lives. I see a miracle in that little boy each and everyday, as he continues to grow and learn and change. There are so many more good days than bad days now and that is such a blessing!