Kambell is doing great developmentally. He still seems to be right on track and is still having lots of good days. He does still have, what I call "symptomatic days." These days seem to last about 3-6 days, and always come before, during, and right after his seizure episodes.
He recently went through a small EEG and MRI, and preliminary results are all great! He has since had one other staring seizure and they are checking him BACK into the hospital next week for a 24 hour EEG. They are wanting to begin his meds but want to find where the seizure activity is manifesting from so that they can better treat it. We finally have our videos uploaded on You Tube of his seizures/self injury behaviors for his Neuro. I will post the links below for anyone who is interested in watching them. Warning, they are not easy to watch :(
Kam is still receiving therapy through ECI but it is far and few between due to my return to work and their heavy work load. We would love to get private pay therapy for him in the near future, but are waiting for our long overdue Neuro visit to find out what our options are.
The babysitter he is going to is great, she is awesome with both the boys and they love her so much. We are so blessed to have found her!
Kam has regressed some with my return to work, but I think that is pretty natural and he will recover in his own time.
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