Kambell is doing pretty much the same. He had another seizure on Monday :( but it seemed to be a pretty mild one. He recovered quickly, unlike the other ones. He seems to be going about 2-3 weeks in between seizures, so that is good news. I am still informing our Neurologist each time and they still do not seem concerned.
Again, the most concerning symptom for me is the self injury behavior. He is no longer eye gouging, but is still head banging and gagging himself. The gagging has become a chronic habit lately and has even escalated to using silverware to gag himself. I always feel that he needs to be monitored constantly. Thank goodness our sitter gave us the Video Monitor so that we can keep an eye on him in bed (this is how we discovered how much he really does head bang).
Today, I took Ky and Kam to our pediatrician for a cough and we left with an "Autism" diagnosis. He has been great in doing research for us and documenting our concerns and he even admitted to me today that he doesn't feel qualified to deal with this and would help us seek out specialists.
This was not news to me, as it has been in the back of my mind for awhile now... But it was a little heartbreaking to hear it from a professional.
ECI is already coming out to do a screening for any and everything to see if we can qualify for some services to deal with his violent tendancies,etc...
Please continue to pray for Kam as we search for an answer and that all the specialists he needs will come into our lives.
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