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Monday, May 24, 2010

Kambell's New Possible Diagnosis

As I previously stated, Kam was tentatively diagnosed with Autism by our Pediatrician last week. I have gone through every single part of the grief process since then. After teaching PPCD for as many years as I have, I never truly understood this about the kiddos and their families until now.
Getting help for the official assessment and diagnosis of AU has been overwhelming! Our Pediatrician doesn't feel well equipped to do it and our Neurologist doesn't do it. Can you BELIEVE that? The entire Cooks' Childrens Neurological team DOES NOT diagnose or screen for AU? Isn't this a Neurological disorder we're talking about?!? Instead I got referred to the Children's Center of FW, which is a 6 month waiting list! FRUSTRATING! Thank goodness, I already have ECI coming out this Thursday to do their own assessments.
Kam has had two more seizures this week already. He has been running a fever due to teething with both his molars at once. Fevers bring out seizures so Kam has finally been placed on Anti-Seizure meds. He is on clonozapam, which is basically Valium. Poor baby took his first dose this evening and he was falling over and walking like a drunk man. I finally put him to bed a little bit early just so that he wouldn't hurt his little self. I am so heartbroken for my little man! Please continue to pray for answers for our baby Bobo!

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